[Table], Q.1 What would help you to tell your doctor or nurse about your constipation? - Constipation in Children and Young People

Respondent No.	Responses
1	A DVD explaining the problems and treatments.
2	Write them a letter.
3	a) To make it more open e.g. school nurses and teachers talking about the subject. b) No embarrassment around the subject.
4	a) Diagrams b) Books c) Pictures d) CDs
5	Talking and diagrams.
6	My pain passport means I don't have to talk to people.
7	That it is where your bowels tighten up and it is hard to go to the toilet.
8	That it sometimes hurts when I poo and my tummy is bunged up.
9	a) Diagrams b) CDs
10	Is there any other medication that he could take.
11	Pictures to point at instead.
12	12. a) Friendly, relaxed manner. b) Talking in layman's terms and not ‘medic’ speak. c) Empathy and understanding.
13	Nice easy to talk to doctors and nurses who you can explain things to frankly.
14	Liam has a problem with pooing but he only has sloppy poos and never hard stools.
15	Maybe pictures, drawings etc.
16	16. a) Approachable staff, b) Maybe a questionnaire before seeing the doctor (sent out with appointments, filled in at time by child/parent, may then include things that are embarrassed to say or forget to say.
17	If the subject was easier to talk about or there were drop-in clinics for incontinence matters available to parents or older children.
18	-
19	-
20	-
21	-
22	Only seen by Dr M x2 per year – would like more frequent access to advice from approachable professionals
23	Feel at ease in clinical setting
24	Nothing
25	Picture chart
26	Telling them I squat, telling them who is bullying me
27	It would help if Liam didn't feel uncomfortable talking about it because he gets upset
28	Charts, a constipation diary.
29	A tape recorder at home to make comments on. Likes the poo chart to explain what kind of poo he is doing.
30	To know what they are talking about and if I know more about the bowel problem.
31	It helps to have the Bristol Stool Form Scale. I find this is an easy way to describe the poo problems.
32	If they were kind and they were female.
33	Friendly staff.
34	To see a doctor or nurse at a time when not playing or watching TV. Appointments at weekend or in hospital.
35	May be a leaflet given to parents in the information given by Health Visitor or even in the information given at birth. The leaflet, to describe a few symptoms and to encourage you as a parent to talk about any concerns or views regarding any poo problems. You tend to keep it quiet or think you are failing as a parent with potty training and if it is your first child what is normal?
36	It would help if the doctors were nice and friendly.

Respondent No.

Responses

A DVD explaining the problems and treatments.

Write them a letter.

a) To make it more open e.g. school nurses and teachers talking about the subject. b) No embarrassment around the subject.

a) Diagrams b) Books c) Pictures d) CDs

Talking and diagrams.

My pain passport means I don't have to talk to people.

That it is where your bowels tighten up and it is hard to go to the toilet.

That it sometimes hurts when I poo and my tummy is bunged up.

a) Diagrams b) CDs

Is there any other medication that he could take.

Pictures to point at instead.

12. a) Friendly, relaxed manner. b) Talking in layman's terms and not ‘medic’ speak. c) Empathy and understanding.

Nice easy to talk to doctors and nurses who you can explain things to frankly.

Liam has a problem with pooing but he only has sloppy poos and never hard stools.

Maybe pictures, drawings etc.

16. a) Approachable staff, b) Maybe a questionnaire before seeing the doctor (sent out with appointments, filled in at time by child/parent, may then include things that are embarrassed to say or forget to say.

If the subject was easier to talk about or there were drop-in clinics for incontinence matters available to parents or older children.

Only seen by Dr M x2 per year – would like more frequent access to advice from approachable professionals

Feel at ease in clinical setting

Nothing

Picture chart

Telling them I squat, telling them who is bullying me

It would help if Liam didn't feel uncomfortable talking about it because he gets upset

Charts, a constipation diary.

A tape recorder at home to make comments on. Likes the poo chart to explain what kind of poo he is doing.

To know what they are talking about and if I know more about the bowel problem.

It helps to have the Bristol Stool Form Scale. I find this is an easy way to describe the poo problems.

If they were kind and they were female.

Friendly staff.

To see a doctor or nurse at a time when not playing or watching TV. Appointments at weekend or in hospital.

May be a leaflet given to parents in the information given by Health Visitor or even in the information given at birth. The leaflet, to describe a few symptoms and to encourage you as a parent to talk about any concerns or views regarding any poo problems. You tend to keep it quiet or think you are failing as a parent with potty training and if it is your first child what is normal?

It would help if the doctors were nice and friendly.

From: Appendix F, Involving children in guideline development

Cover of Constipation in Children and Young People

Constipation in Children and Young People: Diagnosis and Management of Idiopathic Childhood Constipation in Primary and Secondary Care.

NICE Clinical Guidelines, No. 99.

National Collaborating Centre for Women's and Children's Health (UK).

London: RCOG Press; 2010.

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