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Update information December 2016: A footnote on diagnosis of brain stem death in infants was added by NICE to recommendation 1.1.2. A footnote on the NHS Organ Donor Register was added to recommendation 1.1.9. An outdated research recommendation was removed. Minor maintenance done to update links and correct typographical errors.
Excerpt
A significant proportion of people in England and Wales would wish to donate their organs after death for the purpose of transplantation. This guideline recognises the complexities that arise owing to the majority of potential organ donors lacking the capacity to be directly involved in decision making at the time of their death. This guideline seeks to promote the identification and fulfilment of these wishes through: more effective and expedient identification and referral of potential organ donors and a more informed, considered and timely approach to consent for donation that is based primarily on identifying the wishes of the individual whenever known and however recorded.
Contents
- Introduction
- Person-centred care
- 1. Recommendations
- 2. Evidence review and recommendations
- 3. Research recommendations
- 4. Implementation
- 5. Other versions of this guideline
- 6. Updating the guideline
- 7. References, glossary and abbreviations
- 8. Contributors
- Appendix A. Scope
- Appendix B. How this guideline was developed
- Appendix C. References of all included studies
- Appendix D. Full GRADE evidence profiles
- Appendix E. Evidence tables
This guideline was developed following the NICE short clinical guideline process. This document includes all the recommendations, details of how they were developed and summaries of the evidence they were based on.
Disclaimer
NICE clinical guidelines are recommendations about the treatment and care of people with specific diseases and conditions in the NHS in England and Wales.
This guidance represents the view of NICE, which was arrived at after careful consideration of the evidence available. Healthcare professionals are expected to take it fully into account when exercising their clinical judgement. However, the guidance does not override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient.
Implementation of this guidance is the responsibility of local commissioners and/or providers. Commissioners and providers are reminded that it is their responsibility to implement the guidance, in their local context, in light of their duties to avoid unlawful discrimination and to have regard to promoting equality of opportunity. Nothing in this guidance should be interpreted in a way that would be inconsistent with compliance with those duties.
- Organ donation for transplantation: improving donor identifification and consent rates for deceased organ donation
- Organ donation for transplantation: Evidence Update January 2014: A summary of selected new evidence relevant to NICE clinical guideline 135 'Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation' (2011)
- Surveillance report 2016 - Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation (2011) NICE guideline CG135
- Review Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation[ 2016]Review Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation. 2016 Dec
- Factors Affecting the Decision to Grant Consent for Organ Donation: A Survey of Adults in England.[Transplantation. 2015]Factors Affecting the Decision to Grant Consent for Organ Donation: A Survey of Adults in England.Webb G, Phillips N, Reddiford S, Neuberger J. Transplantation. 2015 Jul; 99(7):1396-402.
- The stability of family decisions to consent or refuse organ donation: would you do it again?[Psychosom Med. 1998]The stability of family decisions to consent or refuse organ donation: would you do it again?Burroughs TE, Hong BA, Kappel DF, Freedman BK. Psychosom Med. 1998 Mar-Apr; 60(2):156-62.
- Public attitudes and behavior regarding organ donation.[JAMA. 1985]Public attitudes and behavior regarding organ donation.Manninen DL, Evans RW. JAMA. 1985 Jun 7; 253(21):3111-5.
- Review Decision making on organ donation: the dilemmas of relatives of potential brain dead donors.[BMC Med Ethics. 2015]Review Decision making on organ donation: the dilemmas of relatives of potential brain dead donors.de Groot J, van Hoek M, Hoedemaekers C, Hoitsma A, Smeets W, Vernooij-Dassen M, van Leeuwen E. BMC Med Ethics. 2015 Sep 17; 16(1):64. Epub 2015 Sep 17.
- Organ Donation for TransplantationOrgan Donation for Transplantation
- Oxytropis cytochrome b6/f complex subunit VIII (petN) gene, partial cds; and pet...Oxytropis cytochrome b6/f complex subunit VIII (petN) gene, partial cds; and petN-psbM intergenic spacer, partial sequence; chloroplast.PopSet: 1955170940PopSet
- PopSet Links for Nucleotide (Select 1955170944) (1)PopSet
- OXTR oxytocin receptor [Homo sapiens]OXTR oxytocin receptor [Homo sapiens]Gene ID:5021Gene
- Gene Links for GEO Profiles (Select 109960900) (1)Gene
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